Beach Center on Disability
http://www.beachcenter.org/
Together with families and individuals affected by disability, the Beach Center on Disability strives to make a significant and sustainable difference in the quality of life of families and individuals.

Beach Center Newsletter
http://www.beachcenter.org/pbs/pbs_newsletter.aspx

Families Together
http://www.familiestogetherinc.com/mainpagemap.htm
Families Together, Inc. is dedicated to a society that includes and values all people, encourages, educates, and empowers families that include a child/youth with disabilities.

Keys for Networking
http://www.keys.org/aboutus/sitemap.cfm
Keys for Networking, Inc. serves to sustain and provide leadership for a broad and deep statewide network of families of all races, cultures, and classes.

Advocacy Organizations

The Association for Persons with Severe Handicaps (TASH)
http://www.tash.org/
TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.

National Black Child Development Institute
http://www.nbcdi.org/Welcome/
National Black Child Development Institute online. For the past 31 years, the National Black Child Development Institute has been steadfast in its mission to improve and protect the lives of children

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Regional Prevention Center of Wyandotte County
http://www.wyco-rpc.net
The mission of the Regional Prevention Center of Wyandotte County is to be the focal point for community-centered prevention by providing an innovative framework of leadership, support and guidance thus creating an environment that produces healthy lifestyles free of alcohol, tobacco and other drugs.

Bright Futures for Families
http://www.brightfuturesforfamilies.org/
Bright Futures for Families is a project of Family Voices, developed in collaboration and with the support of the federal Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA).* The Bright Futures for Families initiative was established in 1995 to provide families with family-friendly child health and development information and materials based on the Bright Futures Guidelines used by health professionals across the country.

Family Village: A Global Community of Disability Related Resources
http://www.familyvillage.wisc.edu/index.htmlx
This site integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. The site includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature.

Institute on Community Integration
http://ici.umn.edu/welcome/default.html
The Institute on Community Integration is a federally designated University Center for Excellence in Developmental Disabilities (UCEDD), part of a national network of similar programs in major universities and teaching hospitals across the country.

ICI Newsletters
http://ici.umn.edu/products/newsletters.html

IMPACT newsletter: Enhancing Quality and Coordination of Health Care for Persons with Chronic Illness and/or Disabilities:
http://ici.umn.edu/products/impact/181/default.html

The Institute for Community Inclusion
http://www.communityinclusion.org/
The Institute for Community Inclusion supports the rights of children and adults with disabilities to participate in all aspects of the community. As practitioners, researchers, and teachers, we form partnerships with individuals, families, and communities. Together we advocate for personal choice, self-determination, and social and economic justice.

Nutrition for Persons with Intellectual/Developmental Disabilities
(Factsheet): People with intellectual/developmental disabilities often have a higher tendency of being obese than people in the general population. For ideas on how to improve nutrition in persons with Down syndrome, see the NCPAD factsheet at http://www.ncpad.org/nutrition/fact_sheet.php?sheet=197&view=all.

PACER Center
http://www.pacer.org/index.htm
PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents

Colorado Department of Education Parent/School Partnership Resource Site
http://www.cde.state.co.us/cdeprevention/pi_parent_school_partnerships.htm

Early Childhood Links
http://www.vanderbilt.edu/csefel/partners.html

Family Support 360: The Best Way to Help Families
http://www.tash.org/publications/PA_TASH_connections.html
The July/August issue of TASH Connections will feature articles related to Family Support, including “Family Support 360: The Best Way to Help Families” by Pat Morrissey and April Myers of ADD.

Online Chat Transcripts from LDTalk
http://www.ldtalk.org/transcripts/transcript_121405.html.
http://www.ldtalk.org/transcripts/transcript_111705.html.
LDTalk, a service of the National Center for Learning Disabilities, is an online discussion devoted to topics of interest to the learning disabilities community. The Social Side of Learning Disabilities (December 2005): Expert Rick Lavoie talks about the social side of LD and Understanding Math LD (November 2005): This LDTalk session discussed learning difficulties and disabilities in mathematics.

Family Involvement in Functional Assessment
http://fifa.fmhi.usf.edu/

National Consortium on Leadership and Disability for Youth (NCLD-Youth)
http://www.ncld-youth.info/
NCLD-Youth is a youth-led resource, information, and training center for youth and emerging leaders with developmental disabilities.

A Guardian's Guidebook to Community Residential Services
http://www.hcbs.org/moreInfo.php/nb/doc/1839
A publication that may be useful for legal guardians as they consider or prepare for a transition planning process for the person they represent. This book guides the process in determining if a person can live in the community, and what that community living environment would need to look like. The purpose of this guidebook is to provide information about the variety of community residential options available to adults with developmental disabilities who relocate from State Centers.

Being an Effective and Influential Guardian in Changing Times
http://www.hcbs.org/moreInfo.php/nb/doc/1838
Subtitled "An Information Booklet for Guardians of Individuals who are Protectively Placed and Living at a State Center", this booklet provides guardians with an updated view of changes currently taking place within the state of Wisconsin. It also encourage guardians to take a more active role in the planning and review processes that determine the appropriate residential setting for the persons they represent and encourages guardians to contact the Guardian Mentor program with questions.

The Future of Disability in America
http://books.nap.edu/catalog.php?record_id=11898
Building upon two prior studies from the Institute of Medicine (the 1991 Institute of Medicine's report Disability in America and the 1997 report Enabling America), The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. The study was sponsored by the Centers for Disease Control and Prevention, National Institute on Disability and Rehabilitation Research, and National Center for Medical Rehabilitation Research. Center on the Social and Emotional Foundations for Early Learning.

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National Resources with information specific to kansas

National Dissemination Center for Children with Disabilities
http://www.nichcy.org/stateshe/ks.htm

National Mental Health Information Center
http://www.mentalhealth.samhsa.gov/publications/allpubs
/stateresourceguides/Kansas01.asp

Wrightslaw Yellow Pages for Kids
http://www.yellowpagesforkids.com/help/ks.htm

Kansas Chapter of the American Academy of Pediatrics (KAAP)
http://www.aapkansas.org/content/chapter/aboutUs/aboutus.html
The Kansas Chapter of the American Academy of Pediatrics (KAAP) is an organization of approximately 350 pediatricians in Kansas. Primary activities include advocacy on behalf of Kansas children, families, and health professionals; providing continuing medical education and other resources for pediatricians, pediatric specialists, and other child health care providers; and collaborating with other state organizations and agencies on programs and projects that improve the health and well-being of children in Kansas.

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Beach Center Real Stories about Positive Behavior Support
http://www.beachcenter.org/stories/?act=view&type=General%20Topic&id=9

Association for Positive Behavior Support Examples
http://www.apbs.org/new_apbs/childLinks.aspx

Early Childhood Behavior Project Case Studies
http://cehd.umn.edu/ceed/projects/preschoolbehavior/case.htm

The Center on the Social and Emotional Foundations for Early Learning
http://challengingbehavior.fmhi.usf.edu/index.html

Training Modules for Preventing Problem Behavior
http://www.vanderbilt.edu/csefel/modules.html
These modules were designed based on input gathered during focus groups with program administrators, T/TA providers, early educators, and family members about the types and content of training that would be most useful in addressing the social-emotional needs of young children. The content of the modules is consistent with evidence-based practices identified through a thorough review of the literature

Parent's Guide to Functional Assessment
http://darkwing.uoregon.edu/~ttobin/parent.pdf

Center for Effective Collaboration and Practice: Briefs for Families on Evidence Based Practices
http://cecp.air.org/familybriefs/

Tips for parents: How to get behavior supports into the IEP.
http://www.pbis.org/files/parentiep.doc
This guide, a collaboration between the Beach Center on Disabilities and the Center for Positive Behavioral Interventions and Supports, contains a wealth of suggestions for parents.

Journal of Positive Behavior Interventions
http://education.ucsb.edu/autism/jpbi.html
This journal deals exclusively with principles of positive behavior support in school, home, and community settings for people with challenges in behavioral adaptation.

Four System Implementation Issue Briefs
http://rtckids.fmhi.usf.edu/cssi/ 
The Research and Training Center for Children's Mental Health, University of South Florida has released a series of issues.briefs on case studies about community support for children's Mental Health.

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Online Training Modules

Online Academy Positive Behavior Support Modules
http://uappbs.apbs.org
Seven Online Academy PBS Modules introducing the basics about positive behavior support in schools are available on this website free of charge.

Understanding Problem Behavior: An Interactive Tutorial
http://serc.gws.uky.edu/pbis/

Training Modules for Preventing Problem Behavior
http://www.vanderbilt.edu/csefel/modules.html.
http://www.vanderbilt.edu/csefel/
These modules were designed based on input gathered during focus groups with program administrators, T/TA providers, early educators, and family members about the types and content of training that would be most useful in addressing the social-emotional needs of young children. The content of the modules is consistent with evidence-based practices identified through a thorough review of the literature.

Course Released by Minnesota Partners in Policy Making
http://www.partnersinpolicymaking.com/history
Partners in Policy Making, a project created by the Minnesota Governor's Council on Developmental Disabilities in Minnesota, recently released a new free e-learning course, Partners in Time, to help people with developmental disabilities, their parents, family members and friends, educators and service providers understand the history of society's treatment of people with disabilities from ancient times through the present.

Personal Care Assistance 40 Hour Training Curriculum
http://www.hcbs.org/moreInfo.php/nb/doc/1605
This manual is intended to address two identified training needs for consultants/support brokers working with participants in self-directed care. MODULE ONE: Facilitating the Paradigm Shift for Consultants and MODULE TWO: The Dynamics of Choice and Decision-Making for Participants. The program identifies training needs by addressing the philosophical framework necessary for successful implementation of a participant-directed service and was designed to be delivered in two half-day sessions. 

Creating Positive Classroom Environments
http://www.coe.ufl.edu/Centers/Lastinger/Modules/
ClassroomBehavior/index.html

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Neurologic Disabilities Support Project (NDSP)
http://www.ksndsp.org/
The Neurologic Disabilities Support Project (NDSP) is sponsored by the Kansas Statewide Technical Assistance Resource System (K-STARS) and funded by the Kansas State Department of Education Student Support Services.

Connected Kansas Kids
http://www.connectedkansaskids.com/About/AboutCKK.aspx
as a way to use technology and the technological infrastructure in Kansas to extend the work help more kids with chronic illness, their classmates, and their loved ones across the state. Connected Kansas Kids is a project co-sponsored by Kan-Ed, the Kansas University Center for Telemedicine and Telehealth of the Kansas University Medical Center (KUMC) and Unified School District (USD) 500 of Wyandotte County, Kansas.

Kaiser Family Foundation State Health Facts
http://statehealthfacts.org/cgi-bin/healthfacts.cgi
This site provides information about state of Kansas.

Kansas Department of Health and Environment
http://www.kdhe.state.ks.us/index.html
Welcome to the Kansas Department of Health and Environment's Web site. Our vision is 'healthier Kansans living in safe and sustainable environments'. To that end, we welcome your suggestions and critiques of our service delivery across the state.

Kaiser Foundation Guide
http://www.kff.org/medicare/med020705pkg.cfm
Navigating Medicare and Medicaid: Resource Guides for People with Disabilities, Their Families, and Their Advocates These guides explain the critical role Medicare and Medicaid have come to play in the lives and the futures of roughly 20 million children, adults, and seniors with disabilities - and give people with disabilities new information to help them get the most from these programs.

Information about Health and Insurance
http://www.pacer.org/health/index.htm

National Center on Physical Activity and Disability
http://www.ncpad.org/
NCPAD is an information center concerned with physical activity and disability. Being physically active is good for every body. Being active is an important part of getting and staying healthy.

National Dissemination Center for Children with Disabilities (NICHCY)
http://www.nichcy.org/index.html
NICHCY stands for the National Dissemination Center for Children with Disabilities. We serve the nation as a central source of information on:

• Disabilities in infants, toddlers, children, and youth,
• IDEA, which is the law authorizing special education,
• No Child Left Behind (as it relates to children with disabilities), and
• Research-based information on effective educational practices.

NICHCY Disability-Related Resource Sheets
http://www.nichcy.org/states.htm

NICHCY, the National Dissemination Center for Children with Disabilities, has compiled state resource sheets to provide information about organizations and agencies within each state that address disability-related issues.  These include state agencies serving children and youth with disabilities, state chapters of disability organizations and parent groups, parent training and information projects, and more. 

SAMHSA’s Mental Health Services Locator
http://www.mentalhealth.samhsa.gov/databases/
This Locator provides you with comprehensive information about mental health services and resources and is useful for professionals, consumers and their families, and the public. You can access this information in several ways by selecting a State or U.S. Territory from the map or drop-down menu. 

ObeezCity
http://www.obeezcity.com/
Visit ObeezCity, a website which promotes exercise to fight/prevent obesity in children with and without disabilities, displaying information for parents and games for children to help them become more involved in health promotion.

Improved health care among children with special health care needs after enrollment in the State Children's Health Insurance Program
http://www.ambulatorypediatrics.org/article/
PIIS1530156706002097/abstract
The article, published in Ambulatory Pediatrics, discusses findings from an assessment of the impact of New York's SCHIP on access and quality of care among CSHCN. The study was part of a larger evaluation of CSHCN who enrolled in New York's SCHIP between 2001 and 2002. Abstract available at

AIMFREE Manuals
http://www.ncpad.org/shop/
NCPAD announces the release of the AIMFREE (Accessibility Instruments Measuring Fitness and Recreation Environments) Manuals. These manuals are a validated series of questionnaire measures that can be used by persons with mobility limitations and professionals (i.e., fitness and recreation center staff, owners of fitness centers, park district managers) to assess the accessibility of recreation and fitness facilities, including fitness centers, parks, swimming pools, and trails. Currently, the boxed set of 6 manuals is $125 (each is a 6” x 8.5” glossy, spiral-bound booklet) and a printed (unbound plain paper) copy of each manual is $10.

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Autism Society of America
http://www.autism-society.org/
The mission of the Autism Society of America is to promote lifelong access and opportunity for all individuals within the autism spectrum, and their families, to be fully participating, included members of their community. Education, advocacy at state and federal levels, active public awareness and the promotion of research form the cornerstones of ASA's efforts to carry forth its mission.

National Autism Association
http://www.nationalautismassociation.org/
The mission of the National Autism Association is to advocate, educate, and empower. We will advocate on behalf of those who cannot fight for their own rights. We will raise public and professional awareness of autism spectrum disorders. We will empower those in the autism community to never give up in their search to help their loved ones reach their full potential.

The Interactive Autism Network
www.IANproject.org
Interactive Autism Network (IAN) – the first national online autism registry. Parents are filled with questions about autism, and, unfortunately, researchers are still struggling with many of the same questions. IAN brings these two groups together in a way that's never been done before, through an online registry, to find answers.

Autism Asperger Resource Center (AARC)
http://www.autismasperger.org/

Sharing Information About Your Child with Autism Spectrum Disorders: What Do Respite or Alternative Caregivers Need to Know
http://www.asperger.net/bookstore_9983.htm
Beverly Vicker, Speech Language Pathologist with the Institute's Indiana Resource Center for Autism, (IN UCEDD) is the author of a new book that offers strategies to ease some of the apprehensions associated with parents communicating their child's behavior, daily living patterns, and food rituals to a person who may not be familiar with the child.

Rehabilitation of Individuals with Autism Spectrum Disorder
http://www.gwu.edu/~iri/pdf/32-nd-IRI-2007-Final-03-09-2007.pdf
The 32nd Institute on Rehabilitation Issues has published a monograph, “Rehabilitation of Individuals with Autism Spectrum Disorders.”  Statistical information generated by the Rehabilitation Services Administration (RSA) for fiscal years (FY) 2003 to 2005 indicates that people with autism are severely underserved in terms of achieving employment outcomes by the state/federal vocational rehabilitation (VR) program.  Chapter authors include Lu Zeph (ME UCEDD) and Cathy Pratt (IN UCEDD).

Responsible Rx: Resources for Parents with Children with ADHD
http://www.nclnet.org/responsiblerx/index.htm
National age designed to help parents understand the treatment evaluation and management process after an AD/HD diagnosis has been made.

Centers for Disease Control and Prevention (CDC) Topic: Autism
http://www.cdc.gov/ncbddd/autism/

The National Down Syndrome Society
http://www.ndss.org
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.

National Association for the Dually Diagnosed
http://www.thenadd.org/
NADD is the leading North American expert in providing professionals, educators, policy makers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities.

Spina Bifida Association of America
http://www.sbaa.org/
The mission of SBAA is to promote the prevention of spina bifida and to enhance the lives of all affected.

Family Village Information on Spina Bifida
http://www.familyvillage.wisc.edu/lib_spin.htm

Institute on Community Integration: IMPACT newsletter: Enhancing Quality and Coordination of Health Care for Persons with Chronic Illness and/or Disabilities:
http://ici.umn.edu/products/impact/181/default.html

National Center on Physical Activity and Disability: Nutrition for Persons with Intellectual/Developmental Disabilities (Factsheet)
http://www.ncpad.org/nutrition/fact_sheet.php?sheet=197&view=all.
People with intellectual/developmental disabilities often have a higher tendency of being obese than people in the general population.

Center for Disease Control
http://www.cdc.gov/
The Centers for Disease Control and Prevention (CDC) is one of the 13 major operating components of the Department of Health and Human Services (HHS), which is the principal agency in the United States government for protecting the health and safety of all Americans and for providing essential human services, especially for those people who are least able to help themselves

National Center on Birth Defects and Developmental Disabilities
http://www.cdc.gov/ncbddd/default.htm
The National Center on Birth Defects and Developmental Disabilities (NCBDDD) promotes the health of babies, children, and adults, and enhances the potential for full, productive living. Our work includes identifying the causes of birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.

Emotional and Behavioral Disorders
http://www.pacer.org/ebd/ebdart.htm.

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Translated Articles Related to Family Support
http://www.pacer.org/translated/translated.htm

Families and Advocates Partnership for Education (FAPE)
http://www.fape.org/pubs/index.htm

Early Childhood materials in Spanish
http://www.vanderbilt.edu/csefel/wwb.html.
http://www.vanderbilt.edu/csefel/modules-archive/index.html

School-wide Positive Behavior Support Information in Spanish
http://www.pbis.org/newSpanish/main-es.htm

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Legislation Information
http://www.pacer.org/legislation/index.asp

Wrightslaw
http://www.wrightslaw.com/
Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about special education law and advocacy for children with disabilities.

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Assistive Technology Resources
http://www.pacer.org/links/projectLinks.htm#crc

Simon Technology Center
http://www.pacer.org/stc/workshops.htm
(Select from the menu that says Handouts)

Center for Universal Design  
http://design.ncsu.edu/cud/
The Center for Universal Design at North Carolina State University is a national research, information, and technical assistance center that evaluates, develops, and promotes universal design in housing, public and commercial facilities, and related products.

Get AT Stuff—Assistive Technology Exchange in New England
http://www.getatstuff.org/
The goal of getATstuff is to help get Assistive Technology devices that are no longer being used into the hands of people who need and can benefit from them.  While the Exchange is primarily for New Englanders, it does accept entries from neighboring states. The program is designed to facilitate equipment exchange between individuals and is not for vendors or distributors to buy and sell equipment.

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SAMSHA Mental Health Dictionary
http://www.mentalhealth.samhsa.gov/resources/dictionary.aspx

KIPBS Glossary of Positive Behavior Support Terms
http://www.kipbs.org/new_kipbs/fsi/overallglossary.html